Sunday 27 February 2011
saturday 26th Feb
Arrived at hospital at 11am, Lindsey has a new nurse today she told us she has had a comfortable night but her kidneys are not flushing as well as they should so she is back on dialysis, they also had to give her a couple of units of blood as her haemoglobin was low. Was a busy day for visitor's as Heather came to see Lins and also Willie and Louise came down from Scotland to see her. Medical wise today was quiet, the "fairly optimistic Doctor" was back today he told us they were going to stop the sedation and hopefully in the afternoon she would wake up and we could say hello to her. This didn't happen they sedated her more as they had to change one of her lines that was moving too much. Its this that I find the hardest they tell you one thing then they do another ,I just want my daughter awake so I can talk to her its been 7 whole days since we last spoke it seems like a lifetime.
Friday 25 February 2011
Friday 25th February 2011
Today we went to the hospital at 12pm, expecting to speak to a consultant after Lindseys CT scan. Eventually at 5pm Dr Morris took us all into a room to discuss his findings. The good news is, that there are no tumours anywhere in Lindseys body. The bad news is, that she has 2 huge blood clots sitting in her pulmonary artery. The 'clot buster' worked on the clot that caused Sundays cardiac arrest, but not on these. Administering another clot busting drug is not an option, the risk of a bleed on the brain is too high. Radiographers may have been able to remove the clots, but they are too far down, so now we are waiting to hear from the Cardiothorassic department as to whether or not they can do surgery to remove them. The scan showed that there are 2 areas of Lindseys brain which show deprivation of oxygen, however, these may not have been from the cardiac arrest (our diagnosis, not the doctors). Dr Morris said that they were going to stop sedation, and let her wake, so they can fully assess whether or not there is damage to her brain, but later on, that was retracted, and she was sedated again because she has had such a traumatic day, with the CT scan, and procedures to measure the pressure in her heart.
Monday 21 Feb
We went to hospital there had been no major changes Lindsey was stable the machinery was doing all the work for her, her heart was pumping but with a lot of help from the ventilator,we spent the day sitting by her bedside talking to her willing for her to get better, there wasn't much input from the consultants she was stable Compared to where she was on Sunday Morning she was doing well..however her kidneys were not functioning properly so she was hooked up to a dialysis machine, all her other vital signs were going in the right direction.
Tues 22nd
Lindsey was stable no major changes the Consultant doing the rounds said that things were going in the right direction and that he was cautiously optimistic!! Lindseys sedation was stopped we were all hoping that she would wake up and we could talk to her ,we sat there talking to her willing for her to come round. What no one told was that after the kind of sedation that Lindsey has had it could take around 96 hours for her to wake up.
Wed 23rd
Again we were told no change Lins is stable she is holding her own. The consultant came round Dr Kiani he took David and I into a side room . He asked us to tell him how Lindsey had come to be there ,why I dont know as this is all documented in the notes. He then told us that he was really concerned Lindsey was still critically ill her organs were not functioning as they should and there were concerns that there might be brain damage and that could not be assessed until she woke up. Lindsey is now off the dialysis machine
Thurs 24th.
Again no change Lindsey is stable , she is still sleeping and we are willing for her to wake up . The consultant came around this time his Name is Mr Morris again he takes us to a side room and asks us to tell him how Lindsey came to be here,which is now annoying me as its all in the notes however we comply. He tells us that he doesn't want to scare us or blind us with science, but he is not happy with the way things are going with Lindsey he thinks there are other factors that may have caused her condition but as yet they have not found them he has major concerns bout her heart and wants do do another scan this is done by passing a probe down her throat and gives an excellent and accurate 3Dd pic of her heart .The result of this exploration shows that her heart has a thickening on it and they think this is something that has been building up over a long period, they now are not sure whether she actually had a blood clot at all. Its all baffling and very confusing he says his next move is to order a full body scan to get a bigger picture of what is really happening with Lindsey this is scheduled for 10am on Frid morning.
Tues 22nd
Lindsey was stable no major changes the Consultant doing the rounds said that things were going in the right direction and that he was cautiously optimistic!! Lindseys sedation was stopped we were all hoping that she would wake up and we could talk to her ,we sat there talking to her willing for her to come round. What no one told was that after the kind of sedation that Lindsey has had it could take around 96 hours for her to wake up.
Wed 23rd
Again we were told no change Lins is stable she is holding her own. The consultant came round Dr Kiani he took David and I into a side room . He asked us to tell him how Lindsey had come to be there ,why I dont know as this is all documented in the notes. He then told us that he was really concerned Lindsey was still critically ill her organs were not functioning as they should and there were concerns that there might be brain damage and that could not be assessed until she woke up. Lindsey is now off the dialysis machine
Thurs 24th.
Again no change Lindsey is stable , she is still sleeping and we are willing for her to wake up . The consultant came around this time his Name is Mr Morris again he takes us to a side room and asks us to tell him how Lindsey came to be here,which is now annoying me as its all in the notes however we comply. He tells us that he doesn't want to scare us or blind us with science, but he is not happy with the way things are going with Lindsey he thinks there are other factors that may have caused her condition but as yet they have not found them he has major concerns bout her heart and wants do do another scan this is done by passing a probe down her throat and gives an excellent and accurate 3Dd pic of her heart .The result of this exploration shows that her heart has a thickening on it and they think this is something that has been building up over a long period, they now are not sure whether she actually had a blood clot at all. Its all baffling and very confusing he says his next move is to order a full body scan to get a bigger picture of what is really happening with Lindsey this is scheduled for 10am on Frid morning.
Sunday 20th Feb.
We arrived at hospital, Lins was still conscious but still not quite herself, the Doctor came and talked to us he said that Lins had had another seizure that morning. He said that she was quite ill but he didnt know what was causing the seizures and that she was being transferred to the ICU unit for closer monitoring. The team came to do the transfer they told us to meet them on the ward in about 15 mins and they would have to get her settled in and do their own assesments of Lindsey, we went for coffee. We arrived at the ICU dept and were asked to wait in the waiting room. The ward Sister came and collected us and took us to a side room, we were introduced to Dr Low He told us that Lindsey was very ill she had a cardiac arrest caused by a blood clot on her lung ,she was critically ill and he was basically fighting to save her life. Some time later they came and told us that they had managed to get Lindsey stable and we were allowed to see her It was pretty devastating she was hooked up to all sort of machinery that was working to keep her alive. Lindsey had been heavily sedated in order for the doctors to do what they needed to do without causing her any distress. We were told at this point that she was stable and they were doing all they could do and now it was a waiting game.
Sat 19th Feb
Lindseys condition did not worsen she was stable overnight the doc told us that her blood samples were clear and that her scan was fine.The prognosis was that she had had epileptic fits but nothing else had occurred since the time she went on to the ward they were going to treat her with medicine for epilepsy starting her off on a really small dosage. They also said that she had a temperature and that there may be some kind of infection they would take a urine sample and get it tested they gave her some antibiotics to combat the infection. They would continue to monitor her but as there was no further episodes all being well they would discharge her at 330pm . Lindsey was awake and lucid and said she felt a bit better but she still wasn't quite herself, I assumed that this was due to her infection and that in a day or so when the antibiotics kicked in she would be fine. I helped Lins get up and get dressed she was sitting up in the chair just waiting to go home we talked about having a takeaway for tea and she could choose what kind we would have.At some point in the day the doctor came to talk to us again he said they had decided not to treat Lins for epilepsy they were sure she had a seizure but they were not convinced that it was epilepsy,so it would be wrong to start her on these drugs that she might have to take for life.
At this point the prognosis changed , the blood tests that previously we were told were clear had showed that Linseys blood sugar was very high, they now thought that this was the cause of the low blood pressure etc we were told that they suspected she might be diabetic and that we should take her to the local GP to have this checked out.. 330pm came and went she was still in hospital I decided to go home for a break leaving Lindsey with Nicola,time passed and she still had not been discharged I arrived back at hospital Lindsey was looking worse and had gone back on the bed to lie down, she needed to go tho the toilet , I went with her she did what she needed to do and was washing her hands,she said I don't feel well I feel just like I did on frid,she turned round and her eyes were glazed I said Lins look at me focus and then she collapsed to the floor .
The crash team arrived we were sent out to the waiting room..
A nurse came and asked who was with Lindsey when she fell and asked me to describe what had happened which I did, she said obviously Lindsey wont be going home today.
When we went back to the ward Lindsey was again hooked up to the oxygen .they were taking blood samples which was very difficult as Lindseys veins were not very prominent, Lindsey was conscious she said she didn't feel well and that her ankle was really sore we mentioned this to the staff, turns out she had broken it when she fell in the bathroom. I went home at around 10pm I was exhausted Nicola stayed with Lindsey.
At this point the prognosis changed , the blood tests that previously we were told were clear had showed that Linseys blood sugar was very high, they now thought that this was the cause of the low blood pressure etc we were told that they suspected she might be diabetic and that we should take her to the local GP to have this checked out.. 330pm came and went she was still in hospital I decided to go home for a break leaving Lindsey with Nicola,time passed and she still had not been discharged I arrived back at hospital Lindsey was looking worse and had gone back on the bed to lie down, she needed to go tho the toilet , I went with her she did what she needed to do and was washing her hands,she said I don't feel well I feel just like I did on frid,she turned round and her eyes were glazed I said Lins look at me focus and then she collapsed to the floor .
The crash team arrived we were sent out to the waiting room..
A nurse came and asked who was with Lindsey when she fell and asked me to describe what had happened which I did, she said obviously Lindsey wont be going home today.
When we went back to the ward Lindsey was again hooked up to the oxygen .they were taking blood samples which was very difficult as Lindseys veins were not very prominent, Lindsey was conscious she said she didn't feel well and that her ankle was really sore we mentioned this to the staff, turns out she had broken it when she fell in the bathroom. I went home at around 10pm I was exhausted Nicola stayed with Lindsey.
The week from Hell Frid 18th Feb
18th Feb
The day started normal I got up at usual time for for work. Lindsey had been sick in the night which is very unusual for her, I thought she would spend the day at home , however I bumped into her in the hall and she was as bright as a button, I continued as normal and went off to work. Had an uneventful day and came home around 215ish had lunch and was sitting watching TV, the phone rang it was Richard from the day center Lindsey had collapsed and they called an ambulance for her, I rang Nicola she came to pick me up and we drove to the hospital. We arrived before the ambulance, When the ambulance arrived I went out to meet it Lindsey looked awful she was hooked up to oxygen etc and was quite blue looking I was shocked.
The hospital people took over they hooked her up to oxygen, Belinda told me what had happened she collapsed in the street, and had a couple of fits in the ambulance , this was confirmed by the ambulance people, she was stabilised in the A&E and given oxygen etc we were told she was being admitted to the assesment ward ,blood samples were taken and a person came with a portable scanner and took a scan of her head..
Doctors came to speak to us and ask about Lins medical history,did she have a history of epilepsy etc was she prone to seizures we said no, the only time she had a fit was when she was a baby and it was a feberal convulsion brought on by high temperatures. They took her to the ward she was put put on oxygen to help with her breathing etc/ the doctors said they thought she had some kind of epilepsy and were keeping her in overnight for monitoring we stayed with Lins as long as possible and eventually went home for some sleep.
The day started normal I got up at usual time for for work. Lindsey had been sick in the night which is very unusual for her, I thought she would spend the day at home , however I bumped into her in the hall and she was as bright as a button, I continued as normal and went off to work. Had an uneventful day and came home around 215ish had lunch and was sitting watching TV, the phone rang it was Richard from the day center Lindsey had collapsed and they called an ambulance for her, I rang Nicola she came to pick me up and we drove to the hospital. We arrived before the ambulance, When the ambulance arrived I went out to meet it Lindsey looked awful she was hooked up to oxygen etc and was quite blue looking I was shocked.
The hospital people took over they hooked her up to oxygen, Belinda told me what had happened she collapsed in the street, and had a couple of fits in the ambulance , this was confirmed by the ambulance people, she was stabilised in the A&E and given oxygen etc we were told she was being admitted to the assesment ward ,blood samples were taken and a person came with a portable scanner and took a scan of her head..
Doctors came to speak to us and ask about Lins medical history,did she have a history of epilepsy etc was she prone to seizures we said no, the only time she had a fit was when she was a baby and it was a feberal convulsion brought on by high temperatures. They took her to the ward she was put put on oxygen to help with her breathing etc/ the doctors said they thought she had some kind of epilepsy and were keeping her in overnight for monitoring we stayed with Lins as long as possible and eventually went home for some sleep.
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